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Tuesday, February 06, 20071170822134

Information on Pseudomyxoma peritonei

A very close friend of mine gave me the following message yesterday:

you have a larger network than me, could you leave a msg about PMP cancer on your blog somewhere, so if anybody have information, we could get more information

I know it's not appropriate, not necessarily on your blog, any public websites


I've met the sufferer of Pseudomyxoma peritonei and am afraid that I don't know anything more than what's on the wikipedia and national health service pages. It seems very scary and unformtable, but if you have any additional information about this illness, I would appreciate a comment or an email.

22:22 Posted in Health Care | Permalink | Comments (3) | Tags: pmp, cancer, health

Comments

Hello.

Here's some sources for PMP info. [1,2]

A good group site is at [3]

There are a number of people on the PMPBellybuttons site that have PMP or caregivers of those with PMP. We're very friendly and answer any and all questions.

My husband had PMP. He had surgery with Dr Sardi and after a complete cytoreductive surgery plus heated intraperitoneal chemotherapy (HIPC) and a few round of follow up chemo (Folfox), he is approaching 2 yrs of being PMP-free. It's such a rare cancer, you can't say cured, but disease free. About 1 in 1 million people get PMP, which is about 300 Americans a year.

[1] http://www.pmpawareness.org/index.htm
[2] http://www.surgicaloncology.com/
[3] http://health.groups.yahoo.com/group/pmpbellybuttons/

Posted by: Jennifer | Wednesday, February 07, 2007

Jennifer,

Thank you for the links. I see a "caregiver's corner" [1] over at PMP awareness. Can you give any other recommendations for the friends of families of those with PMP?

Thank you.

[1] http://www.pmpawareness.org/caregiver.htm

Posted by: Dan tdaxp | Wednesday, February 07, 2007

First, a great thanks to Jennifer. Thanks so much for your information.

There is a PMP network called PMP pals. [1]

This is a group of people who have or had PMP in the past. It is a very rare and scary cancer. So hopefully people have it can stick together and help each other at least.

[1] http://www.pmppals.org/

Gao

Posted by: Gao | Thursday, February 08, 2007

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